Monthly Archives: January 2013

January 30, 2013

2013 Motion…

Hello All,

In 2012 the work and commitment lead to two wins and a runner up placing paid off. Las Vegas America Weekend’s 1st place Win in Figure Classic was a most welcome surprise. Competing as Figure Pro brings me so much joy. And into a space now where It is now time to start giving attention to all those little details once again as I prepare for another year of competing, Photoshoots, speaking engagements, appearances and marketing, traveling and hopefully having a great time. I invite you all to stay tuned to my websites as for updates this year as I use my Figure platform as a vehicle to inspire, share, and inform globally about Autism. Let bring support and understanding in for the children of this epidemic!

Upcoming 2013 Competitions:
Lone Star, Galveston, Texas: May 18, 2013
Figure Universe, Miami Beach, FL: June 27-29, 2013
Figure Paris, Paris, France: October(TBA), 2013
Figure/Model America, Las Vega NV: November 22-23, 2013

Love and Light.  -Amber

January 29, 2013

15 Things You Should Never Say To An Autistic

Trigger warning: Quotes of things that shouldn’t be said. They can be ableist and triggering.

There could really be a hundred or a thousand of these, but I’ve decided to choose just fifteen for the sake of brevity and not imploding anyone’s browser. All of these things have actually been said to Autistics, children and adults, and some of them are unfortunately very common. Some happen more often over the internet, and some happen more often in person, but they’re all phrases or questions that can be incredibly hurtful. Sometimes people who say these things are well-meaning, which can make the impact even worse. Especially in those cases, people might not understand why these can be so offensive and hurtful, and occasionally insist that what they’re saying is a compliment, even when it’s not.

1. “So is that like being retarded?”

Factually speaking, Autistic people in many cases do not have an intellectual or cognitive disability, and many people with intellectual or cognitive disabilities are not also Autistic. There are some Autistic people who also have an intellectual or cognitive disability. Nevertheless, the word “retarded” is often very hurtful for Autistic people, as it is frequently used as an insult to dehumanize people with developmental and intellectual disabilities. The r-word is often used to express hatred for people with disabilities. Please don’t use it.

2. “You should be very proud of yourself. You seem so normal. I couldn’t tell that you’re Autistic.”

While this is rarely said to Autistic people whose disability is very visible, it is very frequently said to Autistic people with much more invisible disability. It’s insulting because it suggests that because the person doesn’t appear to be disabled or doesn’t fit preconceptions of what Autistic people are supposed to sound or act like, that person must therefore not have a disability or be Autistic. It also suggests that “normal” is the standard to which anyone should aspire to appear or act (and that “normalization” should be the ultimate goal of therapies or treatments for autism rather than pragmatic coping skills to navigate a world where Autistics are a minority), and therefore that it’s not good to act or speak in ways commonly associated with being Autistic, even if those behaviors don’t actually hurt anyone. This is very dismissive of a person’s disability and experiences.

3. “You must be very high-functioning.”

Many Autistic adults take issue with the “high-functioning” and “low-functioning” labels for a variety of reasons. Some people have received both labels but at different times in their lives, and many Autistics have very uneven skill levels — some people who might be able to articulate their ideas very well at a conference may be unable to travel alone or cook for themselves, while some people who are unable to communicate with oral speech might be able to live independently. That debate aside, this is also very dismissive of a person’s individual experiences with disability. Unless you know someone very, very well, you have no way of knowing what specific adaptive functioning skills or life skills a person has or what his or her needs and challenges might be, and it’s not possible to acquire that information simply by looking at a person.

4. “You’re not like my child; you can write a blog post. My child will never be able to write a blog post.”

Not everyone who can write a blog post can live independently, tend to their own activities of daily life, get and keep a job, complete higher education, travel alone, communicate with oral speech, or manage their own finances. The ability to write a blog post says absolutely nothing about a person’s needs and challenges, and how disability might affect an individual person. There are people like Amy Sequenzia , Larry Bissonnette , Amanda Baggs , Tracy Thresher , Hope Block , Sue Rubin , and Carly Fleischmann , all of whom are non-speaking Autistics or people with autism who have given presentations at conferences, written blog posts, written letters to the editor, published articles in newsletters or journals, and visited legislators. Other people, like Kassiane Sibley and Kathryn Bjørnstad , who are frequently touted as “high-functioning” because of their blogs, do not have consistent adaptive functioning abilities.

5. “I know a kid whose autism is really severe. You don’t seem like him.”

Every Autistic person is different from every other Autistic person. Among Autistics, there is a huge range in individual abilities, skills, needs, and challenges. It is impossible to know what an Autistic’s abilities and skills versus needs and challenges after a brief conversation either in person or in the comments thread of an internet post. What makes Autistic people a group united by a shared diagnosis are the commonalities of all Autistic people. All Autistic people share some of the same core characteristics that define autism — key differences in neurological functioning, sensory and cognitive processing, and communication abilities that often manifest as disability. If an Autistic person was diagnosed by a qualified clinician familiar with autism, that person is Autistic, regardless of whether they look, speak, or act like another Autistic person.

6. “Can you have sex?”

Yes, Autistic people can have sex. Some get married and have children. Some have Autistic children. Other Autistic people are never taught about sex, for a variety of reasons. Autistic people, like all people with developmental disabilities, are at much higher risk for abuse or victimization — sexual or otherwise — than the general population, but that doesn’t mean that Autistic people don’t know about or can’t have sex.

7. “Does that mean you’re really good at math/computers/numbers?”

If there’s one thing that’s sure to offend an Autistic, it’s seeing him or her in terms of common stereotypes about autism. A very small minority of Autistics are also savants. Many Autistics have higher than average measured IQ, and many Autistics have measured IQ that falls right into the median, while still others have an intellectual or cognitive disability. Some Autistics have dyscalculia or similar learning disabilities, and actually find math to be extremely difficult. Other Autistics, including those who might be good at math, simply don’t like it. And yes, some Autistics happen to be excellent with math and enjoy working or studying in related fields. There are Autistics who are relatively computer illiterate as well as Autistics who thrive in the IT world and community. Asking if we like math, computers, or numbers because we’re Autistic is like asking a Black or African American if he or she likes watermelons or rap music because he or she is Black or African American.

8. “But you’re married/have a job/go to college. You couldn’t do that if you were really Autistic.”

Yes, it’s true that every Autistic isn’t going to get married, have a job, or go to college. But plenty of Autistics do get married, have jobs, or go to college. This statement is insulting because it’s ableist. (For those who may not regularly read my blog, ableism is like racism, ageism, or sexism, but directed toward people with disabilities.) While not every Autistic person may be able to do all or some of these things, it’s very ableist to assume that no Autistic person can or that anyone who can must not be Autistic.

9. “Do you take any medications for that?”

This is a very personal decision. Some Autistic people take medications for various reasons, and some do not take any medications. You wouldn’t ask a stranger if he or she was on medication for anything, so you shouldn’t ask an Autistic person whom you don’t know very well if he or she takes medications either. This is very rude to ask someone, especially someone whom you do not know well. The only context in which such personal questions are appropriate with strangers or acquaintances might be during a conference or panel presentation where the Autistic speaker is specifically speaking about his or her experiences.

10. “You have no right to claim to speak for severely Autistic people who can’t speak for themselves.”

Firstly, any non-speaking Autistics can speak for themselves. People like Amy Sequenzia , Larry Bissonnette , Amanda Baggs , Tracy Thresher , Hope Block , Sue Rubin , and Carly Fleischmann are all non-speaking and they can speak quite capably for themselves. Secondly, while every Autistic person has different abilities and needs, that does not mean that Autistic people who may present as highly verbal or invisibly disabled cannot speak to the commonalities that they have with Autistic people who do not present the same way as themselves. Furthermore, any Autistic person will understand another Autistic person’s experiences far better than any non-Autistic person by nature of also being Autistic. That doesn’t mean that I should be advocating for your child in his or her school (unless you ask me to do that, it’s not my place), or that I know your child’s particular quirks or personality, because unless I actually spend time with your child, I don’t and won’t. It does mean that I share the way your child experiences the world, and can speak to that.

11. “Can you please not flap/rock/spin/jump in public? It’s embarrassing.”

Flapping, rocking, spinning, jumping, or other stimming (calming behaviors), in the vast majority of cases, hurts neither the person doing it nor anyone else nearby. There’s nothing wrong with stimming, and this statement communicates that the Autistic person should stop acting like him or herself or stop moving in ways that come naturally and instinctively. This is like asking a Christian who likes to wear cross jewelry to please not wear a cross necklace in public, or asking a Latino or Hispanic from an hispanohablante country to please not speak Spanish while in public. It’s very offensive, and for some people, could be very triggering (psychologically and emotionally traumatic).

12. “You mean you are a person with autism. You are a person first, not a disability or a disorder label.” 

Some people on the autism spectrum do prefer to be called people with autism, and if talking to someone who does, you should call him or her a person with autism. Many of us, however, prefer to be called Autistic or Autistic people, and if you are talking to someone who prefers to be called Autistic, you should also respect his or her preferences in referring to him or herself, and call that person Autistic. Everyone has the right to decide how they would like to be described, and you should respect that right.

13. “What’s it like to be Autistic?”

You wouldn’t ask someone what it’s like to be Black or African American, or Jewish, or Muslim, or Transgendered, or elderly… You shouldn’t ask someone whom you don’t know well what it’s like to be Autistic outside the context of a conference or panel presentation about that person’s experiences — in which case, more specific questions might actually be better and more effective. Besides, every Autistic person’s experiences vary so much that it’d be an injustice to all of us for you to ask a question that implies that there’s one way to experience being Autistic. While we share certain characteristics and experiences of the world, our life stories and our experiences with people and ableism are vastly different.

14. “Have you ever heard of Temple Grandin? Her books are really amazing!”

The answer is almost always yes. But it gets very tiresome for Autistic people to constantly hear about Temple Grandin day in and day out. There are many prominent Autistic people in diverse fields and known for a variety of accomplishments, and it’s very annoying to be constantly compared to the one same person all the time.

15. (Asking a question about the Autistic person to a parent, support person, aide, sibling, or friend who is standing or sitting beside the Autistic person )

Please don’t talk about us as if we’re not in the room when we’re sitting or standing right here. Just don’t. The message that that communicates to us is that we don’t matter and can’t possibly have anything meaningful to communicate.

Original Article by: Divine Comedy Of Autistic Spectrum Errors

Adult blog. Autism articles, art, science and the oft irreverent

autisticland.blogspot.com/2012/03/things-you-should-never-say-to-autistic.html?spref=tw

January 26, 2013

My Recent Episode on Everything Networking Talk Radio

I invite you to check out my recent episode on Everything Networking Talk Radio.  It’s a Talk Show about the Do’s and Don’ts of Networking. Co-Hosts, Mitchell From (Founder of My Referral Network) and Eric Standlee (Founder of InHouston) bring to the table their knowledge and experience in networking to the listeners of this weekly show. Each week, on Everything Networking, Mitchell From & Eric Standlee bring a new guest to the show which brings a new point of view, new experiences  and new Do’s and Don’ts. The purpose of Everything Networking is allow you an opportunity to learn from others’ networking experiences, whether good or bad.

Click on this link to listen in on my interview.   Everything Networking Talk Radio

 

January 23, 2013

Radio Appearance (1/24)

I’ll be on Everything Networking Talk Show with co-hosts Eric Standlee and Mitchell at 2PM! Tune in everyone!

Call-in # 917-889-7327

The Completion of 2012 – The Beginning of 2013

Here we are in a completly new frequency. With gratitude from the help of the collective consciousness, a shift has been created and a new energy anchored. The unified soul intention to uplift the masses has proved to provide the momentum we need during this time or global transformation and ascension. The cooperation and unity in a place of awareness has brought forth more empathy and compassion for us all at this time

January 20, 2013

The SHANK3 Gene

According to the Autism Science Foundation, one percent of all children with autism spectrum disorder (ASD) has a mutation of the SHANK3 gene, making it one of the most prevalent single-gene causes of autism disorders. The Shank3 gene is described below from an entry in the National Center of Biotechnology Information.

[SHANK3] is a member of the Shank gene family. Shank proteins are multidomain scaffold proteins of the postsynaptic density that connect neurotransmitter receptors, ion channels, and other membrane proteins to the actin cytoskeleton and G-protein-coupled signaling pathways. Shank proteins also play a role in synapse formation and dendritic spine maturation. Mutations in this gene are a cause of autism spectrum disorder (ASD), which is characterized by impairments in social interaction and communication, and restricted behavioral patterns and interests. Mutations in this gene also cause schizophrenia type 15, and are a major causative factor in the neurological symptoms of 22q13.3 deletion syndrome, which is also known as Phelan-McDermid syndrome. Additional isoforms have been described for this gene but they have not yet been experimentally verified.

In this video, Dr. Joseph Buxbaum, director of the Seaver Autism Center at Mt. Sinai Hospital in New York City, discusses the SHANK3 gene.

 

January 11, 2013

Bullying and Autism

This study is eye opening at the same time gutwrenching. This is believed to be, according to Michelle Diament at DisabilityScoop.com to be the largest study ever conducted that analyses the issues of bullying among those with autism and other developmental disorders.

From DisabilityScoop.com:

In what’s believed to be the largest look ever at autism and bullying, researchers found that 38 percent of children with the developmental disorder were bullied over a one-month period, in many cases repeatedly. What’s more, of those who were victims, 69 percent experienced emotional trauma and 8 percent were physically harmed as a result.

 

These  young souls should not have to deal with this and this is why it is my personal mission to raise not only awareness, but to advocate for acceptance, for those that are autistic in our society.

January 8, 2013

Pyramids Found In The Brain

New way to image brain-cell activity could shed light on autism and other psychiatric disorders.

A team led by MIT neuroscientists has developed a way to monitor how brain cells coordinate with each other to control specific behaviors, such as initiating movement or detecting an odor.
MIT neuroscientists used calcium imaging to label these pyramidal cells in the brain.
To Read More Interesting Articles, Go To: galacticconnection.com/daily-blog
Asperger and Autistic people have a special connection to Nature. It’s OUR Gift.

January 4, 2013

Equine Facilitated Learning EFL

Your Horse Magazine Julie Brown talked to Franklin Levinson, an American that founded Equine Facilitated Learning (EFL), a method of horse therapy that is designed to help children with autism and attention deficit disorder learn about themselves, interact with others, and communicate.

Read the interview here: www.wayofthehorse.org/Articles/horse-therapy.html

Please watch the short clip below: